Funding under NPRD 2021 is routed only through designated Centers of Excellence (CoEs). In principle, that sounds like good governance but in practice when expertise is missing, centralization becomes another bottleneck. In one of the most prominent rare diseases CoE, tragically lost a child in May 2025 due to complications
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Rare Diseases and The Right to Life
March 11, 2026Funding under NPRD 2021 is routed only through designated Centers of Excellence (CoEs). In principle, that sounds like good governance but in practice when expertise is missing, centralization becomes another bottleneck. In one of the most prominent rare diseases CoE, tragically lost a child in May 2025 due to complications